Awareness Wrap-up

So with the close of Thyroid Cancer awareness month I have been reflecting on my efforts to raise awareness of this cancer. Throughout the month of September, I posted thyroid cancer facts each day on my Facebook page to make my friends and others aware of what thyroid cancer is and how it can affect one’s life. I believe it did bring about awareness; some friends were not even aware that I had cancer and others became more aware of the effects that thyroid cancer can cause. What I hoped to gain from my efforts in this awareness campaign is for people to be informed and be more educated about thyroid cancer; to not only understand what the immediate effects are, but also those long long-term effects as well.

One other very important message that I want to convey to people is that Thyroid Cancer is NOT THE GOOD CANCER! Many survivors hear this far too often; they are told phrases such as you have the “good cancer” or this is the “best kind to get.” People may think that they are trying to be reassuring, but this is clearly is of no help. Those with Thyroid Cancer have to deal not only with surgery and radioactive iodine treatments, but there are the long-term implications as well. It is a lifetime of medication adjustments which come with many side effects such as fatigue, weight gain, brain fog, joint pains, hair falling out – the list is continuous.

One minute you may feel like you are flying higher than a kite with your heart racing a thousand miles a minute; then, the next thing you know it is like you can barely drag yourself out of bed; it is such a fluctuation of highs and lows. The effects of trying to get your body to adjust to the thyroid medications can prove to be difficult as many of the drugs contain fillers or additives that some people can’t handle or react badly to. Not everyone reacts or responds the same way. I have struggled over the last three years to get the right balance of these important hormones and still not quite there yet! However, I think we’ve finally found a drug that has had the least amount of side effects (Tirosint) and now we’re just trying to find the correct dosage that works for me. These synthetic hormones just have no comparison and if I could have my thyroid back without the cancer I would do it in a heartbeat!

In addition, there are the side effects of radioactive iodine ablation, or if you are one of those few whose cancer is so advanced and your only options left for further treatments are external beam radiation, or chemotherapy and then that becomes a whole new ballgame. Bottom line is that there is NO GOOD CANCER period!

No good cancer pic

I do want to share with you this amazing video of my friend Rob Bohning and his perspective of what it is like to live with an advanced stage of Medullary Thyroid Cancer. He has been such an inspiration for me and many other thyroid cancer survivors and is the perfect example of enduring faith! I have so much gratitude for my thyca family; although we are not blood related we are all brothers and sisters that support, educate and lift one another up through the most difficult challenge in our lives, just as any family would do.

http://www.multivu.com/players/English/7080731-astrazeneca-amtcsupport-resources-for-advanced-medullary-thyroid-cancer/

Thyroid Cancer has taken a lot from me. It has taken my thyroid gland, 2 parathyroids, and many lymph nodes. I have had 2 cancer surgeries and radioactive iodine ablation treatment. It took me away from a job that I loved and something I’ve had to work hard to get back to, it kept me separated oceans apart from my family for 6 months; as I was receiving my cancer treatments back in the United States my family was dealing with living through a natural disaster with the Japan Earthquake & Tsunami. It was such a gut-wrenching feeling not knowing if they were dead or alive and something I don’t care to experience ever again. It has been countless trips to the University of Colorado Hospital for multiple ultrasounds, surgery, blood draws and radioactive iodine that never did me much good. It has been taxing on me physically, emotionally and financially.

In the same respect cancer has given me some things as well. I have drawn much closer to God and have learned to trust not only in him, but to trust that there really are good people in this world that truly do care. It has helped me to be more optimistic and to always look for the good in every situation no matter how difficult it may be. Most of all, cancer has taught me that every day is a precious gift not to be taken for granted as I know it can be taken from me at any given time.

I have really been able to understand just how our time here on earth is so limited as I have watched close friends and many others face not only thyroid cancer, but also many other deadly cancers as well which has ultimately shortened their life way before it was time. This is why it is so important to treasure every moment that you have for you never know when your number will be up. Tell the people in your life just how important they are to you, because often times you may think you’ll have time, but then that time slowly fades away and is gone before you know it.

I am truly lucky to be alive and I have my doctors to thank for that. They have been walking this journey with me and without them I would not be here writing this blog post. Nevertheless, until God says that my work here on this earth is done, I will continue to keep pushing forward, living my life to the fullest extent possible and making it my life’s mission to ensure that people are aware about Thyroid Cancer and its effects. If I can reach just one person, then I feel that is accomplishment; by making just one person aware it can cause a trickle effect of many more becoming aware. I give a big shout of thanks to all my friends and family who have stood by me through all of this! Cancer may have taken some things from me, but try as it may it will not break me! So please spread the word about Thyroid Cancer!

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A boy and a dream…….

This one is too good not to share and I don’t think that my good friend would mind me posting this on my site. An 8-year old boy named Andrew had a dream to do something in which he could help his dad, Rob Bohning who is fighting a rare and incurable Stage 4 Medullary Thyroid Cancer. His idea was to participate in a kid’s triathlon in order to raise funds to help those with this type of thyroid cancer. There is very little funding for research because there is such a small population of those who have it and those pharmaceutical companies don’t have much to gain to fund research for this. So it is up to non-profits and patients themselves to raise funds to research this cancer. It started out as a small dream, but something which turned out bigger than you would imagine. In just a short few weeks’ time, this little boy’s dream was brought to reality and was able to raise nearly $7,000 to research Medullary Thyroid Cancer.

I would have to say that the apple surely doesn’t fall too far from the tree as Andrew has learned well from his dad what it means to persevere and to give everything all you got. Rob Bohning has been such an inspiration for me as well as many others, and who has the drive and determination to keep fighting a disease that thinks it will override him, but time after time he has proven to cancer that it WILL NOT WIN! Here is the Facebook link which chronicles this boy’s wonderful dream that has been brought to light:

https://www.facebook.com/AndrewsTriathlon4Daddy?ref=br_tf

As I am writing this, Rob is back at MD Anderson with yet another operation so that doctors can do what is necessary to slow the progression of the cancer. Nevertheless, I am sure that Rob’s Marine training has paid off in helping him to fight yet another war. I pray that God continues to watch over Rob and the many other true cancer warriors who continuously teach us what it means to conquer and overcome and to NEVER surrender!