So in a couple of days will be September, the month in which we recognize Thyroid Cancer Awareness and I will make every effort to make others aware about this disease and its effects. Like all thyroid cancer survivors, the message we want to get across is to #MakeAllCancerMatter!
We as survivors have heard it all before that we have the “EASY” cancer; however, that could not be farther from the truth. It is true that we may not always have to go through harsh chemo, or external beam radiation therapy. However, for those few with persistent metastatic disease they have to resort to these other options when traditional therapies don’t work. With medullary thyroid cancer Radioactive Iodine treatment does not work and the treatment options consist of surgery and sometimes chemo drugs in the hopes to reduce or shrink their tumors. I myself have metastatic papillary thyroid cancer with cancer remaining on my laryngeal nerve and lymph nodes. I’ve had two surgeries and Radioactive Iodine treatment which unfortunately did not work for me as my body is resistant to it, because it does not take up the iodine. I still have persistent disease and further surgeries pose many great risks which could result in the loss of my voice. We have also looked at other less invasive procedures such as alcohol ablation, or radio-frequency therapy but those pose even further risks because of the location of my cancer, as it could cause damage my vocal cords and trachea. My doctors and I have made the decision as a collective team to continue with close observation and with any luck it will not progress further, at least that is what we are hoping for. This is something that is probably saving my life and in the very least is helping me to have a better quality of life as I know it could be so much worse. If my cancer does progress, our last ditch efforts would be to institute using the chemo drugs or external beam radiation, but those will have to be my last line of defense against this disease.
What some may not be aware of is that thyroid cancer can lead many survivors into medical bankruptcy, because it is a cancer that requires lifetime monitoring. I have been in a tough situation myself with medical bills in the thousands of dollars of what has not been covered by our insurance that I have had to pay out of pocket. In addition, over the last year I have lost many friends and other survivors I know to this disease, so yes people DO die from thyroid cancer!! Although it is a small percentage it still does occur.
One thing I cannot stress enough of is to get your neck check at least annually. You can even check your own neck by doing the following, but it is always best to have your doctor check it as well:
If something seems out of sorts with your body and the way you are feeling, always go with that gut instinct as it is usually right. You know your own body best and know when something seems off. Don’t brush it off, but have it checked out. It is better to have it be nothing than to have it turn into something else, like cancer!
I have a very good friend who unfortunately lost his battle to this disease early this year, but he always had very wise words of wisdom for me and many others. He would often tell me that “having a positive attitude will carry you farther than you can imagine – when you lose the mental battle, your body will not be far behind” and I believe that to be very true.
Although, I most likely will never hear those words “cancer free,” I do not let it get me down as I will not allow this cancer to define me. We have to make the best out of the circumstances we are given and be able learn from it. I will continue to keep putting my feet forward and live life to the fullest extent possible! As long as I have breath left in me I will keep on fighting as I will not allow this enemy to get the upper hand and win this battle!
As a thyroid cancer survivor, it is my mission to spread awareness and to help others in their own journey with this disease. I hope to continue to educate others and bring about awareness of thyroid cancer and its effects through this blog and daily interactions.
During the month of September I will be posting the hashtag #MakeAllCancerMatter to my Facebook status and invite you to do the same to your status on Facebook and Twitter to help spread awareness.
Early detection saves lives, so please join me in helping to spread the word about awareness of Thyroid Cancer!